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DEDICATED TO
Everyone who feels abandoned by the very institutions we believed were established to safeguard our Rights
Everyone who feels abandoned by the very institutions we believed were established to safeguard our Rights
Neil Fachon was a 19-year-old engineering-student at Northeastern University when he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable brain stem cancer. His family was with him at Mass General Hospital when the neuro-oncologist said he had three months to live. "Six, if you start radiation."
Shipwrecked so completely, Neil lapsed into a rare moment of self-pity, but with no time to lose the family regrouped and searched out every conceivable treatment, as quickly as possible. After scouring the internet and making many inquiries, Neil chose to enroll in a clinical trial at the Burzynski Clinic in Houston.
Though dogged by controversy throughout his career, Dr. Stanislaw Burzynski has achieved miraculous results treating many patients with "incurable" cancers, including some with DIPG. All began well until the medical system designed to protect patients like Neil instead proved as intractable as the disease in his brain.
DIPG is the first book of a trilogy, covering the time from misdiagnoses to diagnosis, and from choosing and commencing treatment to being denied treatment. Through a long series of moves and counter moves, Neil was caught in the middle of a life and death chess game, against an opponent that was less than above board.
Dean Fachon has a Bachelors Degree in English Literature from Colgate University and a Masters Degree in Technical Communication from Rensselaer Polytechnic Institute. He wrote technical publications for IBM and DEC, and is the author of Grand Illusion a treatise on fiat money. Dean is Neil's father.
"DIPG is written in a way that you feel right there on the journey to save dear Neil. Filled with information based on extensive research and a lot of heartache, this book assists any family facing a rare cancer or disease diagnosis with few conventional options for treatment. Author Dean Fachon's message instills how hope, diligence and loads of Love can make a huge difference."
- Deborah Beauvais, Radio Host and Owner, Dreamvisions 7 Radio Network
If you can help us publicize Neil's story, please share this page with friends and family. We welcome media requests, and will send out review copies when the book goes to print in the near future!
Yours in Truth,
Wendy & Dean Fachon
DIPG
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